Book
Dignity for deeply forgetful people : how caregivers can meet the challenges of Alzheimer's disease / Stephen G. Post.
"A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"-- Provided by publisher.
Record details
- ISBN: 9781421442495
- ISBN: 1421442493
- ISBN: 9781421442501
- ISBN: 1421442507
- Physical Description: 268 pages ; 23 cm
- Publisher: Baltimore : Johns Hopkins University Press, 2021.
Content descriptions
| General Note: | Publisher, publishing date and paging may vary. |
| Bibliography, etc. Note: | Includes bibliographical references (pages 241-253) and index. |
Search for related items by subject
| Subject: | Alzheimer's disease > Patients > Care. Caregivers. |
Available copies
- 8 of 8 copies available at Missouri Evergreen. (Show)
- 3 of 3 copies available at Cass County.
Holds
- 0 current holds with 8 total copies.
Show Only Available Copies
| Location | Call Number / Copy Notes | Barcode | Shelving Location | Status | Due Date |
|---|---|---|---|---|---|
| Cass County Library-Harrisonville | 616.8311 POS 2022 (Text) | 0002205371822 | Adult Non-Fiction | Available | - |
| Cass County Library-Northern Resource Center | 616.8311 POS 2022 (Text) | 0002205371830 | Adult Non-Fiction | Available | - |
| Cass County Library-Pleasant Hill | 616.8311 POS 2022 (Text) | 0002205371848 | Adult Non-Fiction | Available | - |
Dignity for Deeply Forgetful People : How Caregivers Can Meet the Challenges of Alzheimer's Disease
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Table of Contents
Dignity for Deeply Forgetful People : How Caregivers Can Meet the Challenges of Alzheimer's Disease
| Section | Section Description | Page Number |
|---|---|---|
| Preface | p. xiii | |
| 1 | In Praise of Caregivers and Dignity | p. 1 |
| The Ultimate Reality of Human Interdependence | p. 4 | |
| Seekers of Deeper Justice | p. 4 | |
| Learn First from the Caregiver | p. 7 | |
| Noticing Human Dignity | p. 8 | |
| "Deeply Forgetful People" | p. 9 | |
| Words of De-dignification | p. 10 | |
| Connecting with Art and Music | p. 11 | |
| Three Cultures of Dignity | p. 12 | |
| The Confucian Approach in China and Japan | p. 13 | |
| Love at Work in Poverty; Leo and Sister May | p. 15 | |
| An Ethics of Care | p. 18 | |
| Caregiver Questions as Alzheimer's Unfolds | p. 19 | |
| 2 | Hope in Caring for Deeply Forgetful People Why It Matters and Where to Find It | p. 21 |
| Hope in Faith: Caregiver Orien Reid | p. 22 | |
| Hope in the Biomedical Model | p. 28 | |
| Hope in Being Open to Surprises | p. 31 | |
| Hope in Man's Best Friend: The Alzheimer's Service Dog | p. 33 | |
| Hope in Twelve Aspects of the Enduring Self | p. 36 | |
| Hope in the Moments of Joy | p. 44 | |
| Conclusions | p. 48 | |
| 3 | Answers to Sixteen Questions Caregivers Ask from Diagnosis to Dying | p. 51 |
| Alzheimer's as a Cause of "Dementia" | p. 53 | |
| Answers to Sixteen Questions | p. 55 | |
| Q1 | Should we break the news to Grandma? | p. 56 |
| Q2 | How quickly will I decline? | p. 63 |
| Q3 | Are there really any effective drugs to stop this disease? | p. 65 |
| Q4 | Can tender loving care make a difference or is it all just biological? | p. 72 |
| Q5 | Should we tell other people about my diagnosis? | p. 74 |
| Q6 | Will "I" still be there, more or less, despite the silence or confusion? | p. 75 |
| Q7 | Will I "suffer"? | p. 78 |
| Q8 | Do I really want to continue to treat my heart failure or diabetes or dialysis or cancer as this disease unfolds? | p. 80 |
| Q9 | Will I be a burden to those who take care of me? | p. 81 |
| Q10 | Is genetic testing a good idea? | p. 83 |
| Q11 | Should I file a living will or a durable power of attorney for health care? | p. 85 |
| Q12 | Will my remaining ability to make choices be respected? | p. 87 |
| Q13 | Will I be physically or chemically restrained? | p. 90 |
| Q14 | Can I drive? | p. 93 |
| Q15 | Should I participate in research? | p. 96 |
| Q16 | Can I avoid technology and tubes so I can just die naturally? | p. 98 |
| Conclusions | p. 107 | |
| 4 | The Seventeenth Question: Preemptive Physician-Assisted Suicide (PPAS) for Alzheimer's Disease A Caution | p. 109 |
| Two Cases of PPAS | p. 110 | |
| Grandma J | p. 111 | |
| Janet Adkins and Dr. Kevorkian | p. 113 | |
| Sources of Ambivalence: Five Reasons to Question PPAS | p. 115 | |
| Reason One: Do you know how this disease will progress? | p. 117 | |
| Reason Two: What kind of legacy is left behind? | p. 118 | |
| Reason Three: What about interdependence? | p. 119 | |
| Reason Four: Can we learn to notice the expressions of selfhood? | p. 120 | |
| Reason Five: Isn't hospice good enough? | p. 121 | |
| Why Not Legalize PPAS in the United States? | p. 121 | |
| Caution One: Will PPAS diminish social commitment to long-term care? | p. 123 | |
| Caution Two: Will PPAS spill over into other "nonterminal" illness categories? | p. 124 | |
| Caution Three: Is there a risk of going from voluntary to nonvoluntary PPAS and even euthanasia? | p. 127 | |
| Conclusions | p. 128 | |
| 5 | A Caregiver's Ethical Purpose Preserving Dignity, Ten Manifestations of Care, and Respect for the Whole Story of a Life | p. 130 |
| Dignity | p. 130 | |
| Four Stories of Enduring Dignity | p. 132 | |
| Jim's Glorious Twig | p. 132 | |
| Jan's Awesome New Snowflakes | p. 133 | |
| Ruth's Deep Gratitude | p. 136 | |
| Clint's Cowboy Hat | p. 137 | |
| Acting against Indignity and Humiliation | p. 138 | |
| The Nazi Doctors and the Perils of Forgetfulness | p. 138 | |
| The Stark Humiliation of Mrs. H | p. 139 | |
| Dignity in the Parking Lot | p. 141 | |
| The Circle of Care: Ten Manifestations | p. 142 | |
| The Way of Celebration | p. 144 | |
| The Way of Helping | p. 145 | |
| The Way of Forgiveness | p. 146 | |
| The Way of Carefrontation | p. 146 | |
| The Way of Mirth | p. 146 | |
| The Way of Respect | p. 147 | |
| The Way of Attentive Listening | p. 148 | |
| The Way of Compassion | p. 149 | |
| The Way of Loyalty | p. 150 | |
| The Way of Creativity | p. 152 | |
| Respect for the Whole Story of a Life | p. 152 | |
| The Example of Sexual Intimacy and Integrity | p. 154 | |
| Additional Core Values in Caregiver Ethics | p. 158 | |
| Breaking Free from Hypercognitive Personhood | p. 162 | |
| Is a Deeply Forgetful Person a Person? Yes. | p. 166 | |
| Caring Communication | p. 167 | |
| Can We Learn to Communicate? | p. 169 | |
| Conclusions | p. 171 | |
| 6 | Respecting the Preferences of Deeply Forgetful People in Health Care and Research with Phyllis Migdal, MD, MA | p. 173 |
| Everyday Preferences | p. 174 | |
| Health Care Decisions | p. 175 | |
| Reconceptualization: Compassionate Autonomy | p. 181 | |
| See a Lawyer | p. 183 | |
| Research Ethics | p. 188 | |
| 7 | "Is Grandma Still There?" The Mystery of Continuing Self-Identity | p. 191 |
| "Paradoxical" or "Terminal" Lucidity | p. 193 | |
| On Spirituality | p. 195 | |
| A Trip to Bangalore | p. 197 | |
| Fifteen Focus Groups | p. 198 | |
| A Speculative Model of Continuing Selfhood | p. 201 | |
| The Continuing Mystery of Autobiographical Memory | p. 203 | |
| Consciousness as the Ground of Personhood and Dignity | p. 206 | |
| Human Consciousness and Post-Materialism | p. 207 | |
| Hope in Deep Self-Identity | p. 208 | |
| A Pastoral Conclusion | p. 209 | |
| An Epilogue: North Wind | p. 211 | |
| A Caregiver Resilience Program Meeting Alzheimer's Rev. Dr. Jade C. Angelica | p. 221 | |
| References | p. 241 | |
| Acknowledgments | p. 255 | |
| Index | p. 259 |
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